Hi, it’s me again. This time I’m writing to you from Los Angeles, California!
Mom is still in the hospital, and she’s officially waiting on her lungs! As you recall we left Houston and transferred her to UCLA since Texas denied her on their transplant list. (Click here for a refresher)
On April 26th her birthday and Orthodox Good Friday mom was placed on the regional list for a lung transplant!! She was so excited. It’s felt like the longest journey to get to this point. The joy of being placed on the list did quickly come with the constant wonder of how much longer will she have to wait for the perfect set of lungs to come in.
The reason she isn’t on a national transplant list is because of how delicate lungs are. Since lungs can’t live outside of the body for very long, they need to be nearby for a successful surgery.
She is still on the ECMO machine and oxygen. She is still trying her hardest to do her simple daily tasks to regain her strength. The team at UCLA has also put her on a precaution, which means we all wear masks while in her room to help keep her safe from any germs while the search is on for the perfect set of lungs.
The team at UCLA has been nothing short of amazing. They are incredibly knowledgeable, compassionate, and quick. The team was even kind enough to arrange for some previous patients in somewhat of a similar situation as my mom to come and visit in hopes of giving my mom some hope for the future. We were able to meet Nichole and her daughter Lexi this last week. Nichole, like my mom, was also on ECMO with high antibodies. She received her double lung transplant Jan 2019. She looks AWESOME. Nichole was able to relate to my mom, and Lexi her daughter was able to connect with me. It felt amazing to feel understood. Nichole shared a good amount of tips and tricks with us.
While mom is waiting for her lungs to come in, my dad and brother, have started to wrap up life in Houston. They are moving back “home” to LA very soon. Thank you from the bottom of our hearts for your support and constant prayers.
“And now these three remain faith, hope, and love. But the greatest of these is love.”